Give Back
01. Make a Donation
We are a small group of parents organizing a path forward. We have big plans! Whether itโs setting up a website full of information for parents with a new diagnosis of TFE3, holding our first live convention or hosting a fundraising event to help pay for research, we need funds. Please consider making a donation today!
[NOTE:ย We are not yet registered as a non-profit organization – please still contact us if you intend to donate! we will be in touch.]
Show Up
02. Be a Volunteer
Do you have a talent? Website and social media experience, a medical background, non-profit administration, event planning. We could use your help.
Upcoming Events
October 12 - Virtual family meet-up
10am โ 12pm EST (2pm – 4pm GMT) Meet in our virtual room with our kids to meet friends, share stories, and connect!